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The relative rarity of this condition and the difficulty of both diagnosis and treatment has resulted in only a few centers around the world developing the expertise to achieve optimal surgical outcomes for these infants: the Children's Hospital of Philadelphia, the Great Ormond Street Hospital for Children in London, as well as centers in Paris and Israel.
Section 301 and Schedule 6 contain an unusual, perpetual grant of the rights to collect royalties, proposed by Lord Callaghan of Cardiff, enabling Great Ormond Street Hospital for Children to continue to receive royalties for performances and adaptations, publications and broadcast of "Peter Pan" whose author, J. M. Barrie, had gifted his copyright to the hospital in 1929, later confirmed in his will.