WERF was founded in 2006 after discussions between the endometriosis specialists within the European Society of Human Reproduction and Embryology (ESHRE), the American Society for Reproductive Medicine (ASRM) and the World Endometriosis Society (WES).
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She completed the London Marathon on 26 April 2009 in a time of 5 hours 22 minutes, running in aid of the World Endometriosis Research Foundation.